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Polymyalgia Rheumatica (PMR) | Last Active: Feb 13 10:20am | Replies (55)

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Profile picture for tuckerp @tuckerp

@stonewheel Yes. For purposes of these conversations i refer to my corticosteroid as prednisone. However I was taking dexamethasone. I used the conversion factor of 5 to 1. So I started with 4mg tablet which I call 20mg prednisone. I found within the first 2 wks i could move my dosage rather quickly without issues. I settled on half a tablet of 4mg dex or about 10mg of prednisone. I tried several times right from the beginning to go to a quarter of a 4mg tablet or about 5mg prednisone and could not do so. These 4mg tablets are small. you get to a quarter tablet and you think how could this little speck make so much difference. At month 5 I moved to quarter tablet without much pain. I stayed there for a couple of weeks and then moved to every other day for a week then stopped. I contribute it to the fact that my PMR had burned out. Why? IDK? But I do think that I refused to stop my daily exercise and refused to stay on steroids. I also had no other issues. PMR had come out of nowhere however i was under extreme stress. As I mentioned the fatigue was a huge problem. My testosterone once i checked was 300. I use a daily cream and keep it at about 600-650. Any higher and my estrogen climbs and that takes another pill. Although my story is my story. I have learned so much from this site and none of us are the same. I stay on the site to offer my support . I feel that my PMR journey was a fairly quick recovery and maybe can offer some encouragement.

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Replies to "@stonewheel Yes. For purposes of these conversations i refer to my corticosteroid as prednisone. However I..."

@tuckerp

Secretly... I have wanted to take testosterone mostly to rebuild muscle mass. I suppose I shouldn't expect the same muscle mass that I used to have when I wasn't taking prednisone daily for PMR. I would be 20 years younger.

I took Prednisone so I could exercise. I think it almost killed me. I was doing a 50 mile bicycle ride with my brother. I couldn't keep his pace which was unusual because normally I set the pace. My brother doubled back when I couldn't keep up. He was the one who said there was something wrong with me. It turned out that I had left ventricular hypertrophy (LVH) and cardiac arrhythmias.
https://www.mayoclinic.org/diseases-conditions/left-ventricular-hypertrophy/symptoms-causes/syc-20374314
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My testosterone level was once documented to be in the 100's when I was on prednisone. Now it is in the 300's so the endocrinologist considers that to be normal. We are doing things to boost my metabolism. I think if I could increase my muscle mass my metabolism would probably improve.

@tuckerp I appreciate you staying in the site to offer help and support. Thank you.
PMR is a crazy disease.