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@cynmead I have had coccyx pain since 2009. Doctor said if was referred pain from L5-S1 so I had fusion done. It didn't help. Ortho said it was fractured coccyx, so I had what was supposed to be complete coccygectomy. Did not help. Images showed Tarlov cysts, under my sacrum, near my spinal cord. They appeared to be touching nerve endings so had laminectomy done by special surgeon in Dallas. Didn't help. Then, I went to a coccyx specialist at Rutgers who could immediately see that I still had fragments of my coccyx. Had a revision coccygectomy. Didn't help. A spinal cord stimulator had been suggested several times throughout the years but I wanted to fix the problem, not just mask it with a SCS. I had researched them in 2009 and a couple more time after. I often saw poor reviews and was scared. After, all I put my body through, I wish I had tried SCS first. It's relatively non-invasive compared to what I already had done. My husband has Parkinson's and had a Deep Brain Stimulator implanted in his brain, about two years ago. It is helping him. The technology and concept are quite similar. If he can find success with DBS, Brain Surgery, I figure a trial of SCS and SCS surgery should not scare me. I am waiting to see if my insurance company will approve the SCS trial for me.

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Replies to "@cynmead I have had coccyx pain since 2009. Doctor said if was referred pain from L5-S1..."

@levar I hope you do the trial. It should give you an idea as to whether you will get any pain relief. Just be forewarned... there is no guarantee that the permanent implant will help, even if the trial is successful. You can see that from many here on Mayo Connect. I had one for about two and a half years, and it helped a lot...until it just stopped working. I'm not trying to dissuade you. Just go into this with your eyes wide open.

I had DBS surgery at Mayo about 7 years ago I've had PD 10 years. I had a Medtronic SCS implanted in my back after a one week trial period months ago. Medtronic device was preferred because Medtronic was also for the DBS. I've also heard good results about Nevro. I was told that I should not expect 100% pain relief, but 50% would be considered a success. The SCS surgery was fairly easy and not too invasive. Recovery was a breeze. I am currently at about 50% relief and still making adjustments.