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primary periodic paralysis

Bones, Joints & Muscles | Last Active: Feb 3 1:28am | Replies (13)

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It is a bit of a paradoxical situation. I had 4 episodes in a month (a couple of really nasty falls, cuts and bruises but fortunately didn't break anything or hit my head). I had my regularly scheduled neurologist visit shortly after and we discussed possible triggers. Since then, I have been avoiding them and have gone several weeks without a fall. So, it is great that I have better control over the situation, but by eliminating several triggers at once I'm not sure what my actual triggers are. At least with the prospect of warmer weather, I won't be worried about the cold trigger, However, as I sit here the waterfalls in my pool are still running as an automatic freeze protection and I'm in South Carolina!

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Replies to "It is a bit of a paradoxical situation. I had 4 episodes in a month (a..."

@keithl56 Hi Keith. I'd suggest reading some of the stuff on the website mentioned above; it will probably help you get a better idea of which variant best fits your symptoms. The genetic testing may not be conclusive: there are still some mutations that haven't yet been identified. If it shows you have a known variant, that's great, because it gives you a good starting point. If not, you can really only go by what triggers it. Glad you've managed to avoid episodes- that's great.