Tymlos-Timing, travel and meds, Oh My!

Posted by ccps101 @ccps101, 5 days ago

Am about to start Tymlos this weekend and first off wanted to thank the contributors to this board. Have read through many threads and all quite helpful! I have a few more questions:
1. Timing and other Meds:Y’all seem to be all over the place on timing, lol! Some are morning, some night, maybe 1-2 midday. I’m leaning toward morning. But my other Meds, big question. I am on long term low dose prednisone and will be for life. As any of you with autoimmune diseases know, quite important to take Pred first thing in the morning. For me it kicks in about an hour or so after I take it. It’s also a jump starter. After that I feed pets, have decaf, and eat breakfast around 8-9 (get up around 6-7). I then take other meds then (needed with food). Then workout and then just before lunch HRT because interferes with meds. I also have restless leg syndrome, can cause bad sleep so often need to take sleep meds. One of my current autoimmune issues causes bone pain, but I just plow through as much as I can, but also worse at night, thus the sleep meds. Though I have autoimmune diseases, I am fit, active. I’m also small, but healthy.
Given all this, any thoughts on timing? I think I’d ideally like to try after breakfast and just before workout. Anyone done this? Taken, then about 1/2 hour later do your workout? I lift and do cardio.
2. Travel: I do international travel, one reason doc wanted me to use Tymlos as it travels better. I am not worried about it for domestic travel but I do a lot of international trips and long hauls. What do you all use for carrying the med, the pens and the sharps container? The sharps deal they sent me is big! I’m usually on an international trip for 3-4 weeks at a time. Any ideas here? Do I haul the sharps container over, from place to place and then back with me to the US (I assume so). I’m usually team carry on so space is a premium for me. Any travel products that work for you?
Thanks for any ideas. This board has been a lifesaver. BTW I am (ok with doc) starting slow and working up.
Cheers

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cops101. there aren't (known) pharmacokinetic drug interactions that would advise you to avoid taking Tymlos at the same time as your other medications. I like your plan to take the injection a half hour before exercise. It will give you time to ascertain that you aren't feeling likely to fall. And just might give you a little extra energy for the workout.
I'd take a small bag for the tiny sharps and probably at most the single pen you'll need to dispose of in a four week trip at a fire station or pharmacy.
I travel with small ice packs because I'm on Forteo the one without preservative. But there are fancy thermoses you can find on amazon.
You are most probably having bone markers to make certain the medication is effective for you, You are suspected of having a very good doc,
Returning your good cheer,

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Is there a best way to carry it in dealing with TSA regulations ? Would one need some kind of doctor’s note ?

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Profile picture for gently @gently

cops101. there aren't (known) pharmacokinetic drug interactions that would advise you to avoid taking Tymlos at the same time as your other medications. I like your plan to take the injection a half hour before exercise. It will give you time to ascertain that you aren't feeling likely to fall. And just might give you a little extra energy for the workout.
I'd take a small bag for the tiny sharps and probably at most the single pen you'll need to dispose of in a four week trip at a fire station or pharmacy.
I travel with small ice packs because I'm on Forteo the one without preservative. But there are fancy thermoses you can find on amazon.
You are most probably having bone markers to make certain the medication is effective for you, You are suspected of having a very good doc,
Returning your good cheer,

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@gently thank you!!! My doc great, rheumy but she knows osteoporosis well. Yes, she’s got me coming back in April with blood work before then and again in July. I got OP from my autoimmune conditions so it’s great I have a one stop shop for both. She is very well versed.

Thanks for all the tips too. I will start looking for travel items. I did read that sharps can be disposed of in public bathrooms in the sharps container which most public bathrooms have! Gosh have seen those thousands of times and it now just went Ding! So that will help on the travel.

Thanks again, will revert later with how it went.

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Profile picture for nycmusic @nycmusic

Is there a best way to carry it in dealing with TSA regulations ? Would one need some kind of doctor’s note ?

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@nycmusic, hi.
I've been told that it is best to have the prescription in the case. But we never even see the prescriptions anymore. I've traveled domestically and internationally with Forteo pens and the little ice packs in my carry on. I place the little satchel in the tray separately for easy viewing and have never been questioned about the medication.

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Profile picture for gently @gently

@nycmusic, hi.
I've been told that it is best to have the prescription in the case. But we never even see the prescriptions anymore. I've traveled domestically and internationally with Forteo pens and the little ice packs in my carry on. I place the little satchel in the tray separately for easy viewing and have never been questioned about the medication.

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@gently thanks.

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Profile picture for ccps101 @ccps101

@gently thank you!!! My doc great, rheumy but she knows osteoporosis well. Yes, she’s got me coming back in April with blood work before then and again in July. I got OP from my autoimmune conditions so it’s great I have a one stop shop for both. She is very well versed.

Thanks for all the tips too. I will start looking for travel items. I did read that sharps can be disposed of in public bathrooms in the sharps container which most public bathrooms have! Gosh have seen those thousands of times and it now just went Ding! So that will help on the travel.

Thanks again, will revert later with how it went.

Jump to this post

@ccps101 - I am on teriparatide, so not Tymlos. I bought small sharps containers on Amazon (Finepro Safety Box 0.2L) which are quite small (3"x3"x2") that I would use if traveling internationally for a long stay. This might be good for your long trips. I have traveled several times domestically and have never been asked about my pens and needles. International travel may be different though.

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No problems for me flying domestically. Read TSA rules if you want confirmation.

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I just want to thank everyone in this thread. I’ve been so afraid to start Tymlos, for several reasons, travel and having a normal life being chief among them.

I don’t know why I just have this blockage in my head that this medication will tether me to my home for a prolonged period of time, and I’m trying to push that out of my psyche.

Just knowing several of you have managed the daily routine of this medication - internationally, no less! - has been really beneficial. I’ve had two rheumatologists, and neither has helped me navigate these fears/concerns at all. I’ve felt really down about it.

I know the sooner I start, the sooner I’ll be off of it. I’m just struggling mentally with it.

Ok, I’m crying a little now (frustration with myself, ugh 😢), so I will shake this off, but before I go, thank you again. Truly. 🙏🏻

REPLY
Profile picture for beachesanddreams @beachesanddreams

I just want to thank everyone in this thread. I’ve been so afraid to start Tymlos, for several reasons, travel and having a normal life being chief among them.

I don’t know why I just have this blockage in my head that this medication will tether me to my home for a prolonged period of time, and I’m trying to push that out of my psyche.

Just knowing several of you have managed the daily routine of this medication - internationally, no less! - has been really beneficial. I’ve had two rheumatologists, and neither has helped me navigate these fears/concerns at all. I’ve felt really down about it.

I know the sooner I start, the sooner I’ll be off of it. I’m just struggling mentally with it.

Ok, I’m crying a little now (frustration with myself, ugh 😢), so I will shake this off, but before I go, thank you again. Truly. 🙏🏻

Jump to this post

@beachesanddreams Hang in there. I was the opposite, I was so happy to start something and for me so far so good. Every day I take it is one day closer to keeping my bones protected, and one day less of taking this hormone.
Someone else on here mentioned that they were active after the shot (once ensuring no dizziness, etc.). Follow the prescription instructions and your doctor’s instructions but I will say that worked for me since starting—went and cleared and loaded dishwasher. Waited 30-45 minutes to work out. This is just what has worked for me, follow your own specific instructions! Good luck.

REPLY
Profile picture for ccps101 @ccps101

@beachesanddreams Hang in there. I was the opposite, I was so happy to start something and for me so far so good. Every day I take it is one day closer to keeping my bones protected, and one day less of taking this hormone.
Someone else on here mentioned that they were active after the shot (once ensuring no dizziness, etc.). Follow the prescription instructions and your doctor’s instructions but I will say that worked for me since starting—went and cleared and loaded dishwasher. Waited 30-45 minutes to work out. This is just what has worked for me, follow your own specific instructions! Good luck.

Jump to this post

@ccps101 and I have two international trips within the next 9 months, so the tips here have been helpful. Think of all the people traveling with insulin, GLP-1 meds, etc. I am positive all will be well!

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