Hi

Sorry you're having to wait so long for a diagnosis. Identifying your triggers is important while you wait (and for long term management). Keep a journal where you note several times a day:
- Everything you ate/drank, and what time
- Weather (since cold seems to be a factor)
- Any trips taken (weirdly, low altitudes set mine off!)
- Any medications taken
- Any events such as a major fright
- Stress levels
- Strength levels, ideally taken 3 times a day at roughly the same time. I use a very simple test: lie down and raise one leg a few inches. Measure in seconds how long you can comfortably keep it there. (May sometimes be 0 seconds!)
- Attacks
From this you should be able to establish a pattern. You actually need to go back as far as 48 hours from an attack as some triggers take a while to activate.

Carbs, especially anything with sugar, set off hypo KPP; potassium-rich foods set off hyper KPP. Some rarer variations can be set off by either!

Keep this journal for next time you see the neurologist.

Read as much as you can from the websites I mentioned.

If I'm not in a good place with strength levels, I carry a very light camping stool with me in a carrier bag everywhere I go. This means I can just sit down as needed, including in the middle of a supermarket. I probably look like a right charley but who cares.

Another tip is: don't exercise if your strength levels are low. With a bad attack, I do only what absolutely has to be done, and plan things eg using a high stool to wash dishes. Once it eases off I start doing exercise at ridiculously low levels eg bicep curls without weights, building up to bicep curls with a 300ml water bottle as the weight - whoopee! And, with luck, eventually building up to proper weights.

Accept your strength levels as they are, and build up slowly.

Rooting for you. Keep in touch!