@humbug
Hi, I'm on azathioprine. I started on 50mgs in Jan 25, and increased to 100mgs in Feb 25. I knew azathioprine was a 'steroid sparing agent' so when I tried to come off the prednisolone again and my liver levels increased I thought my azathioprine dose was probably too low as it wasn't keeping on top of things. And I knew azathioprine was weight based and I'm 80kgs so I increased the dose to 150mgs last July.
The change was almost immediate and incredible. Steroid side effects significantly decreased and I was able to completely come off the prednisolone.
My last blood test showed my liver levels are still very good. 3 results from the full blood count have just gone into 'out of range' which I'm hoping isn't due to the azathioprine. I see the consultant on Wednesday and bloods will be done again and he should be able to say if it's a problem.
The only real side effect was nausea but consultant advised to take them in the evening instead of morning so I now take them before bed so any nausea happens while I'm asleep.
I'm 61 next month but feel like I'm in my 40s again. Loads of energy and enthusiasm for life. Went to New Zealand in December to visit friends and handled the journey really well.
Original consultant had me on the wrong dose of azathioprine as she just didn't understand the condition and treatment approaches.
New consultant is a specialist in AIH and has made a really huge difference.
I'd say to everyone, don't be afraid to shop around until you get a Dr you are comfortable with.