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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 7 hours ago | Replies (6703)

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Profile picture for rolyhu @rolyhu

Hi. I was diagnosed with idiopathic peripheral neuropathy after falling down flight of stairs. I had never had any numbness in feet before that. After being diagnosed with pre-diabetes, my diagnosis was all of a sudden changed to diabetic neuropathy. My A1C has been 6.3 only 4 times in 13 years, remaining time at pre-diabetic or even normal values, without diabetic meds or diet. I just don't believe it is diabetic. Anyway, it has worsened over the years to the point now my feet are almost completely numb but still painful, some numbness up to knees. Beginning to have some difficulty driving, have many falls, trip over a string in the floor! Medications ate becoming more and more ineffective. I fear augmentation. Has anyone heard of that? Anyway, I am at my wits end.

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Replies to "Hi. I was diagnosed with idiopathic peripheral neuropathy after falling down flight of stairs. I had..."

@rolyhu, Sorry to hear you have diabetic neuropathy. I also have been in the pre-diabetes category most of my adult life and only started making some lifestyle changes after being diagnosed with idiopathic small fiber peripheral neuropathy in 2016. I focused on losing some weight and eating healthier along with intermittent fasting and lowering the amount of carbs I eat. I shared my journey in another discussion here - https://connect.mayoclinic.org/comment/336050/. I do think the lifestyle changes have helped slow the progression some. What I learned about pre-diabetes that the doctors never mentioned to me is that it also puts you in the metabolic syndrome category which also is associated with neurological conditions and neuropathy. Here's some more information on the topic.
-- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/

The Foundation for Peripheral Neuropathy has a lot of good information on Healthy Lifestyles - https://www.foundationforpn.org/lifestyles/.