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Anyone have Athsma & Bronchiectasis?

Asthma & Allergy | Last Active: 3 hours ago | Replies (28)

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@kathyjjb
Hi Kathyjjb
You have had quit a history, being new to all this I had to looked up much of what you went through. I hope your insurance will allow the medications you need. Five years ago I had pulmonary embolism with many very large blood clots that have not all disappeared but have solidified and have caused irritation in the lungs. That is when all the problems with my lungs started, they said I now have Asthma and what I found out from the last CT scan that the bronchiectasis was worse than the last scan, that is when I found out that I had it. I have been tiring to find out if the problems in my lungs are from the old blood clots and I have had know luck, my doctor just ignores my question and I can find nothing on the internet.

ct scan

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Replies to "@kathyjjb Hi Kathyjjb You have had quit a history, being new to all this I had..."

@lreid51 Hi Lynn, Bronchiectasis is primarily the result of chronic inflammation. There are many diseases that can cause BE: asthma, cystic fibrosis, COPD, chronic infections, etc. I would think if the blood clots were causing irritation, they were also causing inflammation. Disease symptoms like inflammation and coughing will make BE worse. So BE will progressively get worse (though for many the new drug Brinsupri is hoped to stop the progression). As for the asthma, have you had the Exhaled Nitric Oxide test? The Methacholine Test? Do you have a NJH certified BE Clinic in your area? NJH is considered the top pulmonary clinics in US for BE and many of us on this site have gone there. Extremely thorough. In fact, one of the conferences I viewed, Dr Daly from NJH stated that most of the patients that got to NJH are referred by the certified BE Clinics. I still have my local doctors, but my NJH doctors are my specialists. My local ID doctor told me she has my NJH ID doctors cell phone number in her phone contacts-and they talk. You should be able to find a good info on Brinsupri and how it works. Just google: "How does Brinsupri work".