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MAC & Bronchiectasis | Last Active: 2 days ago | Replies (21)
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Replies to "Hello @cpolich, You provided some helpful information about dealing with MAC. As this is your first..."
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@hopeful33250 Thanks for asking about me! This is a very nice support group! I’m still at times in denial and try to pretend that everything is normal (whatever that is). I was diagnosed with MAC and aspergillosis about a year ago last October after a hospitalization for pneumonia and a hemorrhage in my left lung. I was treated with Voriconazole for 3 months and the aspergillosis appears to have resolved. The MAC was monitored for the next 8 months. I had some mild progression on my CT scan (increased nodularity throughout and bronchiectasis) as well as a few changes in my symptoms, so I started the 3 antibiotic routine 3 times per week. I am a little more than 5 months into treatment and unfortunately still have positive cultures. I’ll see my ID specialist in a few weeks to figure out what’s next. I’m a dietitian (retired now for about a year) and have treated a couple patients with MAC for malnutrition. So, I do have some previous knowledge of MAC but am learning more everyday. I’m looking forward to hearing more about others on this site and sharing information.