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← Return to Grade 5 prostate Cancer: Is this a death sentence?
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Grade 5 prostate Cancer: Is this a death sentence?
Prostate Cancer | Last Active: Feb 2 9:51am | Replies (36)Comment receiving replies
@brianjarvis Thanks so much, Brian. Very encouraging. I know so much about my own EGFR lung cancer and virtually nothing about prostate cancer. I will get up to speed.
Replies to "@brianjarvis Thanks so much, Brian. Very encouraging. I know so much about my own EGFR lung..."
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@franciekid
I am in the middle of understanding when and how to treat my prostate cancer.
Dr Walsh’s book is a good way to learn about prostate cancer.
https://a.co/d/1j8R36A
As others have stated, PiRads5 lesion on MRI does not mean grade5 cancer. Biopsy info will provide the grade.
Multiple pieces of info will be combined to start the journey of understanding how to proceed. PSA, PSA density, MRI, biopsy, PSMA PET scan, Decipher, and other info will help make decisions.
My lesion is a PiRads5 with possible Extracapsular extension. I meet again this Tuesday with Surgeon to discuss options/recommendations.
Each person’s situation is different. Extracapsular Extension is not good, but my surgeon has indicated, the MRI is a guide but many times during surgery, the ECE is not an issue with removing all of the lesion.
I have been blessed by finding an incredible surgeon and radiology oncologist at City of Hope. They have been extremely attentive to me, even with me not being in high-risk. If you find Doctors and staff not communicating, finding other doctors and/or medical facility may be best.
As Jeff has indicated, you should have a patient portal with all your records, tests, and ability to ask questions (send messages).
Last week, I sent a list of questions to go over during my upcoming Surgeon appointment. I indicated, no response needed. I was shocked when my surgeon replied to my message. He indicated he had some time and provided valuable info. He or his staff has done this multiple times.
My Radiation Oncologist is the Chief RO for the entire facility. Even with all her demands, She has treated me with the upmost concern. When my decipher score was returned, she had her staff call me to come back to the facility and review it with her. Even though it could have waited until my next scheduled visit (5 months in the future). As we met, she was able to get a PSMA PET scan approved by my insurance. She didn’t “have to” do this, but she does. She is not only a brilliant doctor, but also a great person.
There are many great doctors/facilities. Best wishes in helping your husband navigate this journey.