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Anyone have Athsma & Bronchiectasis?

Asthma & Allergy | Last Active: 1 hour ago | Replies (28)

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Hi Lynn, My local pulmonologist diagnosed me with asthma about 12 years ago. 20 years ago I was diagnosed with very mild BE and reactive airways at NJH. I went to NJH last May and the NOx test and the methyl choline challenge came back negative for asthma. Since I was testing positive for M. Abscessus NJH wanted me to taper off my Trelegy and advised me not to use inhaled steroids, which I did. NJH Pulm suggested I use Anora (or Anoro), my insurance would not pay for it. My local Pulm agrees that I have BE but still believes I have asthma. So at this point, I'm just confused. I now use Airsupra, but only as needed. Fortunately, I can go days and even weeks without using the Airsupra. I am hoping my insurance will cover Brinsupri, so I can get started on that. If taking Brinsupri helps me with my inflammation, that should tell me if the inflammation is caused by asthma (or reactive airway disease) or BE. This is just my experience, I know many are diagnosed with both asthma and BE but I think some people with BE might be misdiagnosed with asthma-since inflammation is a symptom of both.

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Replies to "Hi Lynn, My local pulmonologist diagnosed me with asthma about 12 years ago. 20 years ago..."

@kathyjjb
Hi Kathyjjb
You have had quit a history, being new to all this I had to looked up much of what you went through. I hope your insurance will allow the medications you need. Five years ago I had pulmonary embolism with many very large blood clots that have not all disappeared but have solidified and have caused irritation in the lungs. That is when all the problems with my lungs started, they said I now have Asthma and what I found out from the last CT scan that the bronchiectasis was worse than the last scan, that is when I found out that I had it. I have been tiring to find out if the problems in my lungs are from the old blood clots and I have had know luck, my doctor just ignores my question and I can find nothing on the internet.

ct scan