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Replies to "@alive Thanks so much for your encouragement. So far the Car-T has been almost side effect..."
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Feb 15 2:31am | Replies (31)
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@alive Thanks so much for your encouragement. So far the Car-T has been almost side effect free and, other than the platelets, he's doing very well. They do want to do a BMT shortly after which is quite a big move. I'm so glad to see your BMT has done so well for you, it does help gather all the info we need to make decisions.
Unknowns is an understatement! But I'm learning to take things in stride.
Replies to "@alive Thanks so much for your encouragement. So far the Car-T has been almost side effect..."
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@gmacd Well, that first side-effects free few days was a tease, just about day 5, fever, low blood pressure and general fatigue hit like a ton of bricks. But he's bearing it. I keep telling him he's my hero, going through as much as he's endured the past year. He's starting to look and sound a bit better now, they're weaning him off the steroids, and we're hoping he'll be out of the hospital on sunday, and then an event-free recovery. This is quite the Six-Flags mega roller coaster ride!