@dave56pa and all... Dave, did you have pain with your tremors, or tremors only? My son, 57, was an attorney with his own successful practice when Dystonia stopped him cold at age 35. 100% disabled since in a horrible life of constant 24/7 nerve pain, multiple muscle problems, living a life in chronic and acute pain. He wakes every morning screaming for at times 15 minutes in such agony as his body wakes. He sleeps in a recliner with zero gravity at night that helps, has a dilaudid/baclofen pain pump embedded in his back, has the maximum Botox injections every 8 weeks, is on multiple oral meds. Klonapam was stopped abrptly almost killing him, etc. 22 years, possible longer as he was having issues with his muscles prior and worked for several years with heavy workouts, lifting weights, running, heavy exercise to try to get his muscles to relax. Until it was too painful!

The Mayo doctors said DBS would not help relieve the pain, so declined the surgery. He gets nerve ablations regularly and other procedures from his pain clinic.

He's lived a totally isolated life for 22 years, unable to function normally, limited mobility. He is worsening now drastically with increased mobility issues and pain. He needs help but there doesn't seem to be much around!

He gets deep muscle massages that release some of the seizing muscles, but is quite painful.
A.C, we live in Florida, makes him scream in pain... wears heavy jackets in the summer at times! It's tough going into a doctor's building or grocery store with a.c.!

Any suggestions anyone? He is consulting now, very late in the game in my opinion, Rheumatology to get additional help for his overall issues. Hope is eternal!

We've had quite a long, excruciating, debilitating, emotionally and physically exhausting couple of decades with a future of worsening pain and immobility. My health has deteriorated severely as well. At 79, I'm almost bedridden and unable to help him as much. We're in quite a pickle!

Blessings to you... Elizabeth