@deidre77
Honestly, at first I kept waiting for a doctor to tell me they had made a mistake. I had absolutely no symptoms of any problem until about 4-5 months prior to the diagnosis, when I thought I had a UTI but actually didn't. When I finally saw a urologist (it took a while to be seen) she scoped me and wasn’t very good at her poker face. I knew I was in trouble.
I'm no athlete but I'm pretty healthy, walk most days and feel great typically. Since I had no typical risk factors it just didn't make logical sense to me.
Because I'm divorced, my support system were my three older siblings for the most part. My two sons were helpful as well, when they could be. Between family and great friends it helped with my frame of mind so much. I credit them with keeping me positive.
I'm thankful to have had the neobladder option. It works very well. The only difference in my life now is that I go to the bathroom more frequently (about every 3 hours) even setting an alarm throughout the night. I've adjusted to that schedule pretty well though. (Like having a newborn...you get used to the ups and downs in the night).
How did your procedure go??? Well, I hope! How are you feeling?
@jowilliams1
Hi again,
I had wanted to say I was so pleased to hear you adjusted to your neobladder and that everything is going well.
I think this issue may be a likely eventuality for some of us and the prospect may seem overwhelming in a myriad of ways. Hearing you candidly relate your experience has framed this possibility with a more hopeful light (since none of us know what lies ahead). We can still love, laugh and enjoy all that we had done before bladder cancer entered our lives.
I hope your life is filled with happiness, inner peace and joy and once again - thank you for sharing. Be well.