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@jowilliams1

Hi again,

With reference to your experience, you certainly have gone through quite a lot.

If I may ask, how did you emotionally cope when you had no other choice but to have a neobladder? How did it affect your every-day life once you became accustomed to this transition?

I assume you must have had a very strong support system. Somehow, I sense you have a tremendous inner fortitude and from what you say, have adjusted very well and are living a productive and good life. Of course, there must have been some stumbling blocks along the way which is to be expected but apparently those were surmounted.

Thank you for sharing. May you continue to be well and enjoy your life.

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Replies to "@jowilliams1 Hi again, With reference to your experience, you certainly have gone through quite a lot...."

@deidre77

Honestly, at first I kept waiting for a doctor to tell me they had made a mistake. I had absolutely no symptoms of any problem until about 4-5 months prior to the diagnosis, when I thought I had a UTI but actually didn't. When I finally saw a urologist (it took a while to be seen) she scoped me and wasn’t very good at her poker face. I knew I was in trouble.

I'm no athlete but I'm pretty healthy, walk most days and feel great typically. Since I had no typical risk factors it just didn't make logical sense to me.

Because I'm divorced, my support system were my three older siblings for the most part. My two sons were helpful as well, when they could be. Between family and great friends it helped with my frame of mind so much. I credit them with keeping me positive.

I'm thankful to have had the neobladder option. It works very well. The only difference in my life now is that I go to the bathroom more frequently (about every 3 hours) even setting an alarm throughout the night. I've adjusted to that schedule pretty well though. (Like having a newborn...you get used to the ups and downs in the night).

How did your procedure go??? Well, I hope! How are you feeling?