I have records of my CKD dating back about 10 years all plotted along with a list of my medications.
i’ve read the label information and as many of the research papers leading up to the medication‘s that I can find.
I believe I need additional medication now that I have progressed the stage four.
when I discussed this with my nephrologist, he grew quite agitated and accused me of you surfing his authority. All I was asking for was a discussion of what I do next.
He offered me a tour of the dialysis center but no discussion about medication.
When I requested a specific medication that is well within the range of what should be prescribed for my level of CKD he agreed to prescribe it, but refused to get pre-authorization from the insurance company and also refused to monitor any side effects related to that medication.
I’m now looking for a new nephrologist.
In the meantime, I’ve discussed this at length of my primary care physician, who, while willing to prescribe the medication offers that he does not have the specific experience to do the best possible monitoring for a person with CKD 4.
I’ve spoken with the insurance company, including their counselor nurse, and was told that all their permitted to do was provide a list of plan physicians.
I’ve contacted several of these physicians with a written request for a treatment plan and none of responded even though I have a course offered to come in for a visit and obviously pay their consulting fee.
I’m beginning to feel the south Florida. The nephrologist are interested in what they earn from the dialysis centers and are kind of pushing me along on that direction.
@stuartbell Let me add my welcome to Mayo Clinic Connect! I had a response typed out, and it disappeared, dang it! We are not medical professionals on this site. We are fellow patients, family members, and caregivers who share our experiences with others, including what worked, or didn't work.
Does your primary care know a nephrologist they can refer you to?
One of the first things is to determine why you have a decrease in function. Diabetes and high blood pressure are the two leading causes of chronic kidney disease. Other factors can be lifestyle, long term side effects of medications, or hereditary factors. It is important to figure out the root cause, and address that, to proceed forward.
You didn't mention what medication you feel you need at this point. Will you share that with me? As kidney patients often we find we need to do a lot of our own research and education!
Ginger