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Dr said Good news Bad news

Prostate Cancer | Last Active: Feb 5 5:19pm | Replies (47)

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Profile picture for kujhawk1978 @kujhawk1978

@jeffmarc

No disagreement..

My point being that rather than making treatment recommendations on autopilot, do the work to get the clinical data to support the decision.

In my case, my urologist automatically said to take D3.

I said, well, I know the data that supports that but jet's get a baseline and then agree at what intervals and how we will check to determine if the baseline has changed such that we need to prescribe.

I did labs and imaging at 6, 12, and 18 months. There was no change in the clinical data.

So, taking D3 for 18 months may have not been of value, expensive urine as one of my medical team likes to say about supplements without a clinical reason to do so.

One of the idioms I used while in the service was "trust but verify..."

Kevin

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Replies to "@jeffmarc No disagreement.. My point being that rather than making treatment recommendations on autopilot, do the..."

@kujhawk1978
It is a fact that ADT weaken your bones. My doctors specifically recommended, calcium, and vitamin D to help offset that. The longer you are on ADT the more important it becomes.

That’s not the only thing to do to keep the bones strong. I was on Fosamax for six years And have been on a Zometa infusions for almost 2 years. They also keep the bones strong, which I need after eight years of ADT.

Did you had a DEXA scan to see what your bone density is like? Without that you really have no idea what’s going on. Are you really saying nothing changed after 18 months, That would be unusual. Are you saying your T scores didn’t change at all over that time?