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Autoimmune Hepatitis - accepting diagnosis

Autoimmune Diseases | Last Active: Feb 2 8:38am | Replies (21)

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I think more people are being diagnosed with auto immune diseases.
Are they putting you on any medication?
If they are, find out about potential side effects so you can prepare yourself if they hit.
So far, apart from the initial 2 weeks of hell in the hospital I haven't allowed the diagnosis interfere with how I live my life. Except last year I had what felt like a never ending list of medical appointments.
It's a total shock when you're diagnosed, especially if you feel fine. Get a good doctor and don't be scared to change doctor if you're not comfortable with the one you've got.
And don't let this stupid disease rob you of any enjoyment in life.
I went to New Zealand at the end of last year, I still work full time, I'm doing s kitchen fitting course in March (as I fancy having a new kitchen) and a carpentry course in June. I travel around Europe and since 30th December I've been off the steroids.
The diagnosis shouldn't stop you carrying on being the person you were before. The only real difference to me is increased cost to travel insurance and 3 pills before bed. And quarterly blood tests because the pills I do still take are immunosuppressants.
The shock will go and then hopefully it just becomes something in the background heat you rarely think about.
Good luck.

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Replies to "I think more people are being diagnosed with auto immune diseases. Are they putting you on..."

@sarah217
Hi there. I'm curious what immunosupressant you continue to take and at what dose? Also, do you have any side effects from them? immunosupressant?