← Return to Newly diagnosed

Discussion
buc153 avatar

Newly diagnosed

Polymyalgia Rheumatica (PMR) | Last Active: Feb 12 12:17pm | Replies (47)

Comment receiving replies
Profile picture for franklinlala @franklinlala

@ndep I’m cringing at the thought of going 4 weeks without relief from the pain all because some doctors are unaware of the idiosyncrasies of PMR. Your endocrinologist obviously wasn’t aware normal CRP isn’t always an indicator that you don’t have PMR. Thanks for sharing your unique tapering experience. Like my situation, it’s not typical, and it’s helpful to know it wasn’t effective at such a fast taper. I emailed my rheumatologist, and he has already filled another prescription for me to continue on so I don’t go through what you did. Thanks again, hearing from you was very helpful.

Jump to this post


Replies to "@ndep I’m cringing at the thought of going 4 weeks without relief from the pain all..."

@franklinlala My mistake, your rheumatologist, not endocrinologist. That’s even more surprising the withholding of prednisone. Glad you are back on track.

@franklinlala I am not a Dr. I have been in the same place with either my wife or myself looking for answers on AI then making a list for my Dr. However, I doubt that there is a single pre med student that does not know the side effects of corticosteroids. Its a wonderful drug at treating inflammation and slowing your immune system. Its also a horrible drug to be on for any length of time. All Dr's know that. Its treats a simple immune system response such as asthma to the swelling in the brain from cancer. It starts by swelling of face, thickening of the neck, tissue paper skin, weakens your bones, increases cholesterol, increases blood sugar, increases blood pressure, gastritis issues, IBS, tingling in the hands or feet, weight gain and weaken your immune. Probably others. A Dr is then faced with treating those conditions. On top of that most of us will have or have other conditions at the same time. You go from a reasonably healthy person to a chronic patient. My PA allowed me to stay on steroids but ran tests for about 15 different things. You definitely need to be your own advocate and switch Dr's if you have to but simply treating with prednisone could be missing a much bigger issue. I would be satisfied if my Dr wanted to keep digging and testing. I would hate if they simply treated and missed a brain tumor like glioblastoma.