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Scoliosis - Introduce yourself and meet others
Spine Health | Last Active: Jul 20, 2023 | Replies (433)Comment receiving replies
@gailb, gailfaith here. I think we almost put too much faith in busy doctors, not that that is an excuse. But I am now disabled due to a Dr.'s mistake but I don't blame him completely. Several years ago before I had one of my knees replaced, the Dr was giving me cortisone and Synvisc to hold off on the replacement as long as possible. One Friday he had injected such and I was fine for the weekend but woke up Monday morning very weak. I basically did nothing much physically except sit and read and by Friday I was back to my "normal." The next time I met with him I mentioned it and he said we'll never give you another big dose of cortisone again. Two years later I had my other knee replaced and at a post surgery follow-up, he had to aspirate the joint to remove fluid. He left that job for his resident to do, but the resident couldn't do it, so the Dr. came in and did it. Of course when I am lying down I can't see what they are doing. I was again fine for the weekend, but again on Monday morning I was very weak again and realized he had probably injected cortisone again. I figure,d since the resident started it, apparently their routine is to inject cortisone following an aspiration, so after the Dr. successfully removed the fluid, he saw the other syringe and per routine, injected it. I thought again by Friday I will be OK again, but this time the damage was permanent. So now I am fighting to stay out of wheelchair as even the Doctors at Mayo told me I can get worse but never better. So the lesson is......don't assume a doctor remembers every detail about every patient ....or even thinks you are someone else.. Several yrs ago I made an appt with another doctor in a totally different field. I had only seen him several times previously. Looking a "my" chart", he started asking me about some medications and I had no idea what he was talking about. Finally he asked my name and then he realized he had someone else's chart! So......if you have thoughts or ideas that any doctor or other professional may be thinking you are someone else, even though you both may be embarrassed ........ASK. They probably won't thank you verbally but I'm sure they will at least think about it later and be grateful for your questioning....even if they were correct in the first place. In your case, maybe he had the right person in mind, but had not updated himself with YOUR records. It doesn't cost anything to ask and it may save........who knows what!
Replies to "@gailb, gailfaith here. I think we almost put too much faith in busy doctors, not that..."
Lauralee here. At this point what good does it do to blame. The damage has been done. Hanging onto unforgiveness causes more angst in our own life. The other person is unaware. I'm so sorry
gailfaith. I'm a minister and will pray for His hand of healing and peace be upon you.
@lauralee Thanks for your kind reply. I was sort of shocked at the other reply I got. And thanks for your prayers. What denomination are you with? Depending on where I live and what churches are around I am Conservative Baptist or Christian Missionary Alliance members. gailfaith
One more item; my rib cage has been pressing on my heart and lungs as my S curve moves to the right. I'm wondering how you are doing?
@lauralee I know by your response in the following post that you are addressing me based on my question to you previously. But I am not sure who this one is addressed to. I've been with Connect for a while and I just learned that if you put their name with the @ sign in front, that indicates to whom you are addressing! ( Colleen, please correct me if I am wrong in this statement!)
Good to hear that even though you don't have a church, you wear many hats . But sorry to hear that you have physical problems. Does that cause pain, or just discomfort? Does it inhibit easy breathing? I am very fortunate in that I seldom have any pain with any of my problems and even then not much. Last year I had a HUGE kidney stone and I was slightly uncomfortable for a week before I went to the ER. Others say a kIdney stone is worse than giving birth. I praise the Lord for sparing me the pain. gailfaith
@gailfaith. I do have pain and have been in pain for much of my adult life. Sharing with others I believe my body has a low tolerance for pain. I found a few places that do ART for curved spines. I will try a few sessions to determine if I can tolerate this technique. I am not wheelchair bound and try to keep a strait posture as much as I can. Few people are aware I have a curved spine probably because I wear clothes that cover the curve.
The older I get ( 72) the less active I can be do to the pain. There are many things I want to do and want to accomplish. I keep pushing ahead and know I can do all things through Christ who strengthens me.
@lauralee Thanks, now I know you are addressing me! Amen to you last sentence! When I was in high school and college, each month I had a lot of pain and in college I had a standing order for demerol i.m. for pain. So I can't help but wonder if that help me get a high tolerance for pain. However in 1976, I was going to a chiropractor who was good for me, but one day as I got out of my car felt something move in my back, so I sent to see him. He didn't re-diagnose me and used the same treatment and I ended up with severe sciatica and was out of work for over 3 months as I was in constant pain and couldn't[ sit down. I had a Myelogram and he said regardless of those results, he'd go ahead with the spinal surgery anyway, but after the myelogram, before they even took me back to my room in the hospital, he asked if I had seen my orthopod but I hadn't since this was the bicentennial weekend and no doctors were around. THe surgeon said that he was back now and sent him up to my room. The orthopod told me to stand up but I had been told not to raise my head off the pillow and he said," I HAVE to see you stand." so I did. His exact words were, "I think you can hack it this time without surgery" and he was very RIGHT. Yes I was out of work for 3 months, but after that I went back to technical rock climbing, etc. with no problems. But now 40 years later I am getting scoliosis, ( and I am not sure if my Sleep Number bed is responsible for that) .and I am glad I never had that surgery. But now I have no pain, unless I move in a weird way, and I can't describe how I move to cause that as it happens so quickly, I don't have time to analyze it! But I probably made you "jealous" talking about my lack of pain and I apologize for that! But I will pray for you. Handy how prayer can "work" long distance! I am toying around with the idea of getting a Craftmatic bed as I am not sure if the Sleep Number bed is good for me. But both beds are in the 2-3 + thousand dollar range and my SN bed is only about 3-5 years old. gailfaith
@gailfaith. I'm not at all jealous, rather I'm happy for your lack of pain. I'm happy for those who don't have scoliosis too.
Thank you for sharing some of your experiences: I learn from others.
Blessings to you and all who are connected to Mayo Connect.
@lauralee Yes, you are SOOOOoooooo right. As Christians, I should have never used the word "Jealous" or even " envious". Sorry. gailfaith.
Can't we just keep to the subject and leave politics and religion out of it and just respect each other and their beliefs? Marield65
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But I am now disabled due to a Dr.'s mistake but I don't blame him completely.
You don't Blame him, ? I do.