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@franklinlala With my first symptoms of PMR my doctor prescribed me 32mg prednisone for 3 days, (after a few hour’s symptoms gone) then tapering down every fourth day to 16, 8, 4 so in total 12 days of prednisone. My symptoms returned on day 13 in the evening and were back on day 14. But my doctor told me it is a way to be sure you have PMR because when your pain would remain when taking prednisone they have to search for another diagnose.
I was referred to a rheumatologist after that and she wouldn’t want to give me prednisone because CPR was not elevated at that time. I had to wait for 4 weeks in tremendous pain (!!!) to have a PET scan. Painkillers did not help at all, I avoid taking medication but I have never been more happy when I could take prednisone again.
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@ndep I’m cringing at the thought of going 4 weeks without relief from the pain all because some doctors are unaware of the idiosyncrasies of PMR. Your endocrinologist obviously wasn’t aware normal CRP isn’t always an indicator that you don’t have PMR. Thanks for sharing your unique tapering experience. Like my situation, it’s not typical, and it’s helpful to know it wasn’t effective at such a fast taper. I emailed my rheumatologist, and he has already filled another prescription for me to continue on so I don’t go through what you did. Thanks again, hearing from you was very helpful.