Meningioma: Anyone else? I'm frightened

Thank you so much for your kind words. It’s not easy to not think about it, but I think I’ve done a pretty good job lately. I was in a downward spiral with health and family issues when I was first diagnosed. That sent me plunging. Had a test done, said I had mild cognitive decline. My family was not worrying, as my husband told them there was nothing to worry about. Wth. It’s not that I want anyone to worry about me, but I certainly want them to know about it, and why I may act this way or that. Good luck with yours!

@piperleah its so hard for our loved ones to really understand till they are lying in a uncomfortable sofa, couch, bed hard as a rock thing taking turns watching over you every night and taking shifts as to whos up next. they need to watch some videos now so if and when the time comes they dont shy away or cant handle things as they are meant to do. i was lucky first go around and it was costly on family, taxed their life styles and energy and so much more, my best advice is get connected in prayer chains and group prayer chains , they really work. I'm sending you a prayer now and good vibes-------------sent. have a blessed evening

@piperleah its so hard for our loved ones to really understand till they are lying in a uncomfortable sofa, couch, bed hard as a rock thing taking turns watching over you every night and taking shifts as to whos up next. they need to watch some videos now so if and when the time comes they dont shy away or cant handle things as they are meant to do. i was lucky first go around and it was costly on family, taxed their life styles and energy and so much more, my best advice is get connected in prayer chains and group prayer chains , they really work. I'm sending you a prayer now and good vibes-------------sent. have a blessed evening

My meningioma is odd shaped 1.5x1.8cm. Having issues lately and now there is fluid around it where there wasn't before. Have neurosurgeon appointment tomorrow at Vanderbilt to determine next steps

Hi, I just found out I have a timy Meningioma tumor from a MRI also and my Doctor said they are almost always benign. I too, am going to get an apointmetnt with a neurologist. My Doctor also said they may just wait and see what happens. Best of wishes!

@piperleah its so hard for our loved ones to really understand till they are lying in a uncomfortable sofa, couch, bed hard as a rock thing taking turns watching over you every night and taking shifts as to whos up next. they need to watch some videos now so if and when the time comes they dont shy away or cant handle things as they are meant to do. i was lucky first go around and it was costly on family, taxed their life styles and energy and so much more, my best advice is get connected in prayer chains and group prayer chains , they really work. I'm sending you a prayer now and good vibes-------------sent. have a blessed evening

Thank you for the hug

@terid hi! I’m going to have radiation next week and would like to know how you feel afterwards

@jackie2k they made me a mask that went over chest and head. can be a little scary at first if you need one that is.. best if you relax and they will help you get through it easier , some great techs. as to after effects i had a pretty big tumor and had to have the radiation twice. didn't lose any hair. that was the plus. just ask any specialist or nurse and there are hundreds of people here to lend support. have a blessed day. i have not really had any un-natural symptoms. sorry not much help. have a blessed day today.