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Anyone have Athsma & Bronchiectasis?

Asthma & Allergy | Last Active: 53 minutes ago | Replies (25)

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I have both asthma and bronchiectasis (with MAC). It is challenging having these conditions together. Here's what works for me:
-I was diagnosed with eosinophilic asthma by an asthma/allergy/immunology doctor. The PA I had been seeing in his office referred me to him for an "immune workup" to see if I had anything else going on besides regular allergies and environmental asthma. He prescribed Fasenra for the eosinophilic asthma; this treatment has helped greatly.
-I use Breyna daily for asthma; albuterol as needed; nebulized albuterol when wheezing a lot
-for me, asthma wheezing sounds different and is usually accompanied by tightness in chest and coughing and is relieved by 2 puffs of albuterol
-bronchiectasis wheezing sounds deeper, almost like pneumonia crackling, and gets better or goes away after I nebulize with 3% saline solution twice daily (prescribed by my pulmonologist)
-If I'm still having trouble with a dry unproductive cough, I take 1-2 puffs albuterol which usually helps calm it down.
-If I'm concerned about my symptoms, I message or call one of my specialists for guidance (do I need an appointment, urgent care, or the ER?)
-I use a flutter valve once a day mid-afternoon, and/or active breathing technique when I start coughing again in between am/pm saline nebulized session.
-to prevent infections I wear a mask when in public indoor settings (my pulmonologist recommended this, since even a cold could exacerbate my lung problems)
-I wash my hands as soon as I get home; and use hand sanitizer when I'm out in public
-I get a flu and covid shot every fall (also got an RSV shot at age 60)

I take it one day at a time. Some days are better than others. Meanwhile, I continue to see 3 specialists for these: asthma doc, pulmonologist, and infectious disease for the MAC.

I have learned a lot from this patient community and also the NTMir Global Forum. It will take some time to learn all you need to know, so I suggest you check in here regularly and read the posts, and links to educational videos and documents.

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Replies to "I have both asthma and bronchiectasis (with MAC). It is challenging having these conditions together. Here's..."

@kaypnw Curious if you also tried allergy immunotherapy (aka allergy shots)?

@kaypnw
Thank you for sharing, this is new to me. I have had Athame for 5 years but had very few problems, but 2 weeks ago I found out that I have had bronchiectasis for a while. Two weeks ago I had the prefect storm according to the paramedics. First the bronchiectasis then the athame kicked in. I got good care in the ER and will be seeing a Respirologist in a few months and my doctor will send me for another CT scan in a few months. But I fell like I don't know what to do at home to help myself, I have no experience with something at this level.

@kaypnw - will you explain more about what this suggestion means? I think that will be helpful to me and other members.

- I use a flutter valve once a day mid-afternoon, and/or active breathing technique when I start coughing again in between am/pm saline nebulized session.

@kaypnw

Wow that is a lot to handle!
You are doing everything right and correct.
Bravo/Brava

I take all the vaccines of course. Especially RSV.
I wear a mask in public. Hand washing is the most important. Also I try never to use public restrooms. Why? Fecal Matter is aerosolized when you flush and travels around the BR. So your breathing that in without wearing a mask it's not good. Yuck.
One day at at a time.