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Weighing the cancer risk reduction & quality-of-life cost of ADT?
Prostate Cancer | Last Active: 5 hours ago | Replies (88)Comment receiving replies
Thanks Jeff
I’ve been reading some of your postings. I have Kaiser too. I go to the Vallejo Kaiser as I live in Vallejo. For me I have stage 4 metastasis prostate cancer diagnosed 14 months ago Gleason 8. Bones and lymph nodes. PSA was 600 at diagnosed. Put on Lupron and then 2 months later added Zytiga. 4 months after diagnosis PSA 0.1 and has stayed that way as of today. I have SPOP mutant. 10 percent of men get that. I’m 70 and workout like you and know that is a big help.
Wondering what you think of Kaiser. Are they a center of excellence for cancer or even close. With Kaiser senior advantage Medicare plan I would imagine it would be hard to switch to just regular Medicare so I could go to any hospital. Your thoughts ?
Thanks and have a nice day
Replies to "Thanks Jeff I’ve been reading some of your postings. I have Kaiser too. I go to..."
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@dietzpagan
You should request a second opinion oncologist from Doctor Andrea Harzstark. She is the only Genito urinary oncologist at Kaiser in the whole country. She’s been my doctor for eight years and she is incredibly good. She was trained at UCSF and I have never asked her a question. She did not know the answer to. She make sure to meet with every one of her patients every three months either they’re with a video or telephone call.
With an advanced case like you describe, she is the person you want helping make decisions for you. I have told her that I want a certain drug and she has agreed to let me have it. That’s why I’m on Orgovyx and Nubeqa now. After 16 years of PC, I’ve been undetectable for the last 26 months. I have BRCA2, which makes my cancer much more aggressive, It’s come back four times but she has been really helpful with everything.
Never heard of the SPOP mutation. Do you know if the PARP inhibitor works with it? I know it does work with some other mutations besides BRCA.
I was on Zytiga for 2 1/2 years. It caused me to have four Afib Events. One of them landed me in the hospital for four days because they couldn’t bring my pulse down due to an antibiotic I took. Zytiga also gave me high blood pressure for which I am still taking three pills twice a day. The drugs do keep my blood pressure quite stable and low. Zytiga causes a lot of fatigue for some people, If that happens, they need more than 5 mg of prednisone. Just some things to be aware of. Nubeqa Has really worked well for me. I’ve had absolutely no side effects from it. I do know people that have been on Zytiga for five years and it worked quite well for them, Everyone’s different.
Sorry for the repeat information I find it difficult to track what I have told people in the past