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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 2 days ago | Replies (1068)

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@debschmalbach hi deb, I had rLMS but not so lucky to get 16 yrs NED. I was diagnosed in Oct 24/ and had surgery to remove the football sized tumor. I had a baseline scan in December. In March for my first scan it showed an aggressive metastatic lesion on my liver. By the time I was ready for chemo ( biopsy, ports,cardiogram etc) the scan just before chemo showed three growing lesions. I have had the new std of care for this type lms..... Doxorubicin/6 cycles and Tribectedin 23 cycles . And have completed the doxo and 13 of the tribectedin. All my lesion have shrunk and should be ned by my next scan. The chemo is rough even if you don't have nausea. The fatigue is devastating but I still get to hold my grandchildren and kids

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Replies to "@debschmalbach hi deb, I had rLMS but not so lucky to get 16 yrs NED. I..."

@jeshaw6801
Wow. Thank you. That is very inspiring. I would like to ask if you felt like you still had quality in your life with the chemo but I am hearing you say you still get to hold your grandchildren. I think that clarifies it for me, wishing you many precious moments with your grandchildren.