@celia16
Not sure the treatment your refer to, but we have been fortunate to be able to have been receiving Leqembi, the only med ever approved for Alz. It is a grueling 18 months of every-other-week IV infusions at Mayo Clinic here in FL. But even with all that effort and cost, at best the med is only designed to delay the onset of dementia symptoms by 3-6 months. No cure, no reversal, just delay of symptoms. So we have been through 30 of 36 infusions so we pretty much have already received the intended benefit. So it is what it is. She is declining still, perhaps at a slower pace than it would have been?? There is no real way to tell objectively, unless one were to regularly do cognitive testing, which is really not feasible and is not performed. We just go every 2 weeks to an infusion center. She endures it like a champion - but to what end? No help, really other than the delay in symptoms. I guess it has bought us time with her, which is actually so valuable and easily overlooked. Such an awful, cruel, disgusting and really inconceivable sentence she has been given. And I and the family are taken along for the ride. God help us and Bless us, it is all we have.