I am brand new to this site and about a year into unfortunate journey with my wife. She is proceeding from mild to moderate AZ and it is so awful and unfair that it brings me to tears. We have always been active and traveled and socially busy, but now that is grinding to a halt, as one can imagine. We still have bands of friends calling to have us go there or meet here but we have turned into the couple at home here in FL, and now they are lining up to come visit us. Great except for the fact I am the sole caregiver and now need to do EVERYTHING- plan, shop, cook, drive, north desk,i, etc etc. It is exhausting and a little overwhelming. I use analogies all the time so here’s one: we are all on the highway of life as adults. Speeding along, enjoying the ride, cruising alongside friends & family. Until we get afflicted like this (along with my health issues as well at same time) and are forced to take the next exit. Nobody follows us, they wave and blow kisses and continue cruising and living life while we exit the flow and settle in to our new, challenged roles. Sad and upsetting and a little embarrassing to be honest.

But that’s my position and opening volley. I wish you all the very best and pray hard and long for peace & acceptance, for there is no cure snd this will continue to be our lives till our last breaths.