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Scoliosis - Introduce yourself and meet others

Spine Health | Last Active: Jul 20, 2023 | Replies (433)

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@3naneri

I've been diagnosed with scoliosis at 16 years old, and I am now 45 and my curvature has gotten to 42 degrees now. I have degenerating discs too now. It has gotten soooooo painful! I wake up every morning now with back spasms, it almost feels like the muscles in my spine are highly inflamed. But there seems to be no cure? What exactly can I do? My orthopedic surgeon just tells me to try to swim, and that we will just monitor its further progress every year. I feel so helpless. Meanwhile, I still wake up with the pain every day, it goes all the way down to my hips and legs now. Ouuuuuuccchhh!!! :-(((
What else can I do? I can't imagine living like this until I die ... OMG. 🙁 Helpppp!

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Replies to "I've been diagnosed with scoliosis at 16 years old, and I am now 45 and my..."

I am far from an expert on scoliosis, and I have now developed it myself, but have had a "bad" back since 1963. I am now 81 with other physical problems, and am in PT weekly for those issues. For my back in general, not specific for scoliosis, I go to a Chiropractor with ART training. (ACTIVE RELEASE TECHNIQUE) and I am mostly pain free, But stretches the chiropractor taught me works wonders. Lay on the floor or a hard mattress on your back. Bring your knees up toward your chest and then pull them down to one side as much as possible , keeping your back flat on the floor and hold it until it until it no longer feels tight. Then repeat to the other side. If my back "pops" doing that (that does not hurt), that usually relieves most of my pain for what ever and not necessarily for the scoliosis. Don't' rush this exercise. Hope this might help. @gailfaith

Thank you for the tip. I'll try this exercise! I'm grateful for any advice.

@3naneri
I have scoliosis and have had it since I was a baby. I am now 68 years old and I never really connected my lifetime of back pain with the scoliosis before the last few years. Now I understand the issues that are the result of the scoliosis and im astounded. I, like @gailfaith, have started working with a chiropractor who is using ART and laser therapy on me. I've only been twice and I can feel the difference. I'm sore today, but I have 4 more sessions with him. I felt great after the first treatment. He said this pain would happen, so I m sure its part of my muscles reawakening after nearly a year of being stuck in one place. I recommend some type of "muscle release" therapy. You can Google, Active Release Technique" and read about how it works. I first learned about it on Mayo Connect from a person with chronic pain. People have also recommended Rolfing as a help in pain relief.

I wish you luck in finding some relief and a therapy that works to gives you at least some freedom from pain. I also take Tramadol, 50mg, 4 times a day. I occasionally supplement it with Tylenol on particularly painful days.

@gailfaith, thanks for the exercise tip. I'm adding it to my routine.

Thanks for making us aware of yet another helpful technique! I have gone through several Rolfing treatments and I has made a very significant difference for my pain level and my mobility. My MRI actually shows a improvement as the muscle are not pulling my spine to the same degree as they were before. I highly recommend Rolfing, but I am interested in finding a certified ART practitioner as well!

Please read the post below regarding ART therapy and also consider researching Rolfing to find a certified Rolfer in your area. Rolfing has made a LOT of positive difference for me. Best wishes!