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Has anyone had HUGE swings up and down in GFR over time ?
Chronic Kidney Disease (CKD) | Last Active: Mar 4 12:49pm | Replies (19)Comment receiving replies
@faithfully123 Welcome to Mayo Clinic Connect! I see you are taking high blood pressure medications.
There can be several factors in reviewing our eGFR numbers, and how those tests could be affected. Variables to consider include: if you were sick or recently sick before a blood draw. Level of hydration or dehydration on the day of blood draw. A different lab was used to process the samples. If you exercised before the blood draw. Even if you were fasting or not for the blood draw.
Many of us have co-morbidities, that is, other health concerns going on. Seeing that you have an appointment with a nephrologist, ask them to place you on a cancellation list, in the event someone has to cancel and you can get in before two months out. If you have printouts from your bloodwork results, take them with you.
As far as researching living donor, it is good to be starting that task, but most transplant centers will tell you that your current eGFR is still high enough to not consider transplant. And dialysis is really a treatment for those of us who get to 10-15% eGFR. That said, I am glad you are looking into all of this. It's a "firehouse of information", isn't it? Please feel free to ask me any questions you have!
Ginger
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@gingerw Thank you soo much for the response. I see from this forum you are quite active, very knowledgable and very compassionate. I applaud your strength and your commitment. You are in my prayers.
Yes, I have my Urologist sending over everything ( labs, scans , etc. ) to the Nephrologist. I am on the cancellation list. I understand that transplant and dialysis is not the course of action for where my GFR is at now. I am being proactive ( and maybe paranoid ), in case my one remaining kidney were to loss function, very fast. The fact that my left kidney severely atrophied and now has little or zero function, and this happened at some point in the past 11 years, with no explanation or hypothesis by anyone as to why, when, how fast, or if my right “good “ kidney could do the exact same thing has me rattled and on edge, worrying. Also, as a constant stone former, I fear an Acute Kidney Injury in my right “good” kidney from a stone or stones, and a fast and huge loss of total kidney function.
As far as questions, is that enormous type of swing up and down in GFR even something anyone experiences? I read these studies taking about all cause mortality rate increasing from a drop in GFR at the same rate as a RISE in GFR, and they are talking about 5 to 10 points up or down, and mine has moved over 50 points. Frankly, that freaks me out, leaving me confused.
Thank you again Ginger.