@jercalif I don’t think it had anything to do with extra compassionate urologists.
When I was initially diagnosed with PCa in 2012, my first comments to my urologist were, “I don’t know anything about prostate cancer so, I’ve got a zillion questions to ask before you cut anything out of me, or bombard me with radiation, or inject toxic chemicals into me……” That set the tone for our future discussions. (In fact, he recommended surgery; I said no, my numbers are in line with active surveillance protocols. I was on active surveillance for about nine years.)
No, we have no urologist shortage here. With 2 major hospital networks, many urology centers, and a VA medical center nearby, there is no issue with access or it being a “seller’s market.”
With my PCa journey, at each step of the way - urology, radiation oncology, and medical oncoming - it always involved self-advocacy and shared decision-making.
There were no less than a half-dozen decision points where we weren’t in agreement on my treatment path. I never felt pressured or that I had to do what the urologist/radiologist/medical oncologist suggested. When their argument was stronger than mine, we went with their recommendation; when mine was stronger than theirs, we went with my recommendation. But, that required me to thoroughly research and come up to speed on the nuances and protocols with this disease so that these would be informed discussions, and not just emotional opinions.
As often happens having different medical teams, our experiences were totally different. I think that I was fortunate in having selected a medical team that was open to working with me (rather than being assigned a team as some are).
“How do you know if a urologist is compassionate until you meet?” At that first referral appointment you just sit and talk with them about your situation, as if you were interviewing them (like you would if you asked someone to work on your house, or replace your roof, or do any other major project for you). Once you feel good that you’ve found someone you can work with, then go on to the next step.
If I lived in a “seller’s market,” things might be approached differently. But, I don’t; so I can’t answer from that perspective.
@brianjarvis I think that what it boils down to is that if you are in a seller's market then you have to limit your urologist "negotiations" that might alienate your urologist to only the ones that are the most important to you, and since I want a relatively hard to find fusion biopsy I think I'm just going to have to "go along to get along" with regard to the pain, and then once I have my fusion biopsy done I can then see how hard to find the next step will be, and then decide whether it is worth risking alienating my urologist over that next step.
That next step (probably) that I would prefer is a [RALP + suprapubic catheter], but I expect that it might be impossible to find a urologist that will give me a referral for that until it is deemed to be "medically necessary", even if I am willing to pay cash for it. Actually, from my perspective, a truly well-contained prostate cancer might be a better biopsy result for me than a "no cancer" biopsy result, because cancer might entitle me to a RALP, whereas no cancer won't.
If it were breast cancer, I could do an Angelina Jolie and have a prophylactic removal, but that isn't normally done for men's prostates, and I understand the reasoning...my prostate isn't isolated and exposed like a woman's breasts are, and so it's a far more risky operation than a double mastectomy (I assume).