I'm going through same thing. Hubby diagnosed 22 years ago all contained in the bladder. On and off over the years with frequent scans etc. We're on BCG last maintainince round, and cat scan showed up a tumor outside bladder, and now it's metastatic bladder tumor in lymph node. Only one, surgically removed and now waiting to see Oncologist. It's been a crazy 22 years with many side affects. I feel your pain, we're totally scared and waiting. Just know you're not alone. Virtual Hug's