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Profile picture for Helen, Volunteer Mentor @naturegirl5

@missbiscuit Welcome to our Gynecological Cancers support group. You've been through a lot in less than one year. It sounds like the reduction ind osage of Lynparza allows you to feel better. The balance problem and lightheadness sounds awful. I'm relieved to know you are working with other specialists to try and figure out what's going on with that.

How are you feeling overall? Can you the things that you enjoy doing despite the balance and lightheadedness?

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Replies to "@missbiscuit Welcome to our Gynecological Cancers support group. You've been through a lot in less than..."

@naturegirl5
Hi, Helen, and thank you yes, I can still do things that I enjoy. I am still experiencing the balance problems and “lightheadedness” - The lightheadedness is a feeling that I’m constantly going to faint (but I never faint) and I found out that it is called pre-syncope. I do not think it is the Lynparza, because it started when I was on a break from the drug. I think it must have something to do with damage from my original chemotherapy. I am seeing a different specialist at Yale next week… a neuro-oncologist - so I’m hoping he can get to the bottom of my problem!

I would like to repeat (for those having any trouble with Lynparza) that they should check out having their dosage lowered, because lowering mine from 300 twice a day to 250 twice a day has made me feel so much better… And my oncologist insists it doesn’t interfere with the efficacy of the treatment.
All the best to you all and God bless you. To make you smile here is my dog Thumper, coming in from enjoying the snow 🤗 (click on it to enlarge).