Hi all. I am a Connect mentor and a Mayo patient currently being evaluated for FMD. I was in ER last week for a GI bleed and they did a CT scan of the abdomen that showed irregularity and beading of the renal and external iliac arteries. After being discharged from the hospital, I met with a primary care provider to discuss follow-up care and CT findings. She ordered an MRA of the neck and head for today, and it showed mild changes in the blood vessels consistent with fibromuscular dysplasia. I also have a known aneurysm in my right ICA that was found over 5 years ago, but it is calcified and minimual risk of rupture, so the neurosurgeon has no plans to intervene. Now I wonder if the previous undiagnosed FDM and aneurysm are related. FDM in the brain did not appear on the previous MRA, performed 2 years ago.

I have an appointment in the Vascular dept at Mayo Rochester next week to discuss. I have no symptoms, so as others have mentioned, it was found by a scan for another reason.

If anyone has suggestions on what questions to ask the vascular provider, I would appreciate.

Tagging the following because Colleen tagged them in an earlier comment. @lpyne @123sandy @parrot53 @GratefulEveryDay @kelsi @mom4thelord @queenkeb @caroline58

Thanks