@chinasmom and @suzylulu.....Becky, where do you live? Just wondering if anyone could help give you a pulmonary doc recommendation. Just curious, are you the one that had all the problems with your medication when you started and your daughter was helping you out? I hope you get some answers.

@suzylulu.....the only reason I knew I had MAI was because I threw up blood about 4 years ago when we were stationed in Germany. While in Germany they monitored my status through catscans, but nothing that they wanted to act on with medication. (They did not tell me I had bronchiectasis nor MAI...he may not have known what to look for, or maybe I didn't have it at the time?) Then, I moved a little less than 2 years later and started seeing a St. Louis pulmonologist. He diagnosed me with mild bronchiectasis and probability of MAI. However, I guess my MAI was not active so he did not act with medicine. This past Xmas, my catscan got worse with the MAI and the bronchiectasis, so I took a sputum sample to ensure that I had MAI and started on the meds. I will have now been on all three meds for one month this Thursday. I am lucky that I have really had no symptoms taking the medicine....occasionally a headache which could also be from dehydration too. I get tired at times, but nothing that I can't usually push through. But, I also will not hesitate to lay down if I need it. Maybe I have taken a nap 3 times in the month. OH....yes, I do have a side effect...a little insomnia. I think the insomnia might be getting a "little" better...I feel I am able to get "enough" sleep to help me feel rested when I wake up.