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Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (14)
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Replies to "@dadcue Can I ask, if you are not being treated with prednisone anymore, what are you..."
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@mimsy1
I like it when people ask me about how I'm currently being treated. It was a "stroke of luck" that Actemra (tocilizumab) was tried on January 1st, 2019.
https://www.gene.com/patients/medicines/actemra
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I will never forget the date because it was a New Year and a new beginning for me. There were some trials and tribulations from being on Prednisone daily for 12 years to treat PMR. It was either luck or divine intervention ---I'm not sure what it was but I consider it a miracle that I haven't needed any prednisone for the last 5 years.
I have multiple autoimmune conditions so not PMR alone. My rheumatologist describes it as a "full range of rheumatology problems" which started decades ago.