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DCIS Treatment Plan
Had invasive removed with good clear margins but still have multiple small (2mm) pockets of DCIS (precancer/stage 0) after re-excision and recommendation is mastectomy/amputation.
I’m on Temoxifen currently and plan to take as long as possible, along with vigilance active surveillance. My invasive was grade 1 hormone positive slow grow and no longer on progesterone. No family history and genetic testing showed no mutations for any cancers.
I have already heard all the stories from women that go through with mastectomy for precancer but I would like hear from anyone who had residual DCIS and chose radiation, anti hormone treatment and active surveillance. Radiation oncologist said 28% chance of reoccurrence if we continue with original treatment plan moving to radiation or said differently there is a 72% of no reoccurrence.
My opinion is that if invasive came back, I would then get mastectomy but is my last straw and know at that point I did everything I could to save my breast and get more use out of my sexual organ with intimacy with my husband.
Thank you
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@birdie60 Bless you! You are smart. I can tell that you do your research, take your time, don’t let anyone rush you into something… Such as radiation where you still have questions. I went for breast conservation. I’m on month 5 of healing with an open wound on the radiated breast… If you want to do any surgery after radiation, please remember that there are complications… But only in the radiated breast. If you choose to go ahead and get radiation first, I would wait at least a year before you do your mastectomy. Yes, with your family history I understand your thoughts on mastectomy. I wish you all the very best as well as the best doctors you can find. Please remember that the surgeon is the most important doctor in this journey.. find one you can connect with .
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2 ReactionsThank you for responding and kind words. That's my hope that I will definitely connect with the specialized breast surgeon that I have been referred to. Unfortunately my appt isn't until 2/12/25. So many things to think about and consider. Blessings and prayers for your continued healing.
@birdie60 - If you need to unravel your thoughts after the appointment, I will be here for you. The way I understand this now, is completely different than when I was just beginning this journey a year and 1/2 ago.
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2 Reactions@ritalu Thank you ! met with my regular DR this morning. She was very pleased that I was assigned the care team I got. So that made me feel soooooooooooo much more better. She answered lots of my questions, and also noted which ones that I would need to take up further with the oncologist and the surgeon. She herself stated if she was diagnosed, this is the team she would choose. Have a blessed day and thank you for reaching back out again.
Have you completed your journey ? Are you cancer free ?
I am so happy to hear this! It's feels great to be in the best hands.
The last I heard is that I am indeed cancer free. I am still dealing with wound care from the 2nd surgery. It is normal for healing to take longer after radiation. I think it will take another month or two.
Thank you for asking.
Rita