Esophagectomy: What is life like Afterwards?

Posted by bakerwd4 @bakerwd4, Jul 28, 2024

Hello, my dad was diagnosed with esophageal cancer in March. His tumor is very small and isolated, thankfully! He has been a champ and has finished chemo and radiation. His esophagectomy is scheduled in a couple of weeks. He and the rest of my family are starting to feel the fear and reality of this procedure. My dad's not a big talker but I know he is scared. I would love to connect with others to learn about what life has been like after this surgery so I can help support my dad. I am also hoping to get him involved with some support groups with others who have experienced the surgery. It would be so beneficial for him to connect with others who have been through what he is going through. Any insight on post-surgery recovery and life would be very appreciated!

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

you are welcome. Any time, just ask, perhaps I can help.

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Profile picture for gdj @gdj

I’m one year out from surgery, doing well. Hasn’t been easy, but not awful either.

He will handle it well, I bet.

I’m happy to talk if you want to do that. I try to help where I can.

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Hello, this os the first time i'm using this site. your post is from 2024 and today is January 26 2026. my brother is about to have an esopagectomy Feb 3 and i'm so scared. it will be done in canada.

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Call me, let's talk. 605-484-3319.

Gary

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My husband is 4 months post surgery. We changed a lot of every day things prior to surgery so it would be easier for us such as eating, smaller meals more frequently, not drinking liquid liquids while eating we bought an adjustable bed, etc. post surgery. The biggest thing he dealt with was being tired and Building back up his strength and motivation however, he is doing very very well and we are very grateful. We have gone on vacation. He has shoveled the snow and life is slowly returning to what our new normal is . He had his surgery done at Mayo Clinic in Rochester Minnesota best of luck with your surgery God bless.

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Any advice on dealing with excessive phlegm post surgery?
My husband does sleep elevated already, and it typically just bothers him in the morning sometimes minimally at night

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I use saline spray to clear my sinuses and throat. You can buy it at any pharmacy. I spray it in both nostrils and let it drain down my throat. I then cough up as much phlegm as possible.

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6 chemo and 25 radiation, Christmas of 2024,surgery April of 25...small tumor stayed in esphogus, treatment, s took care of it but everything and everyone, said surgery, 65 years old,doing ok surgery is deff, life changing eating good no feeding tube,lost 20 lbs,non....I mean non stop stop GERD,acid reflux, sphinx valve gone its like non stop volcano down there,don't bend over very long...adenocarsonoma,elevated bed cost under $2000 is deff a nessisary, feel very fortunate, even tho its my private hell,after reading about so many on hear,love and prayers to everyone on hear....willing to answer any questions anyone may have.

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Profile picture for jimbon @jimbon

6 chemo and 25 radiation, Christmas of 2024,surgery April of 25...small tumor stayed in esphogus, treatment, s took care of it but everything and everyone, said surgery, 65 years old,doing ok surgery is deff, life changing eating good no feeding tube,lost 20 lbs,non....I mean non stop stop GERD,acid reflux, sphinx valve gone its like non stop volcano down there,don't bend over very long...adenocarsonoma,elevated bed cost under $2000 is deff a nessisary, feel very fortunate, even tho its my private hell,after reading about so many on hear,love and prayers to everyone on hear....willing to answer any questions anyone may have.

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Profile picture for jimbon @jimbon

6 chemo and 25 radiation, Christmas of 2024,surgery April of 25...small tumor stayed in esphogus, treatment, s took care of it but everything and everyone, said surgery, 65 years old,doing ok surgery is deff, life changing eating good no feeding tube,lost 20 lbs,non....I mean non stop stop GERD,acid reflux, sphinx valve gone its like non stop volcano down there,don't bend over very long...adenocarsonoma,elevated bed cost under $2000 is deff a nessisary, feel very fortunate, even tho its my private hell,after reading about so many on hear,love and prayers to everyone on hear....willing to answer any questions anyone may have.

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@jimbon hello i hope this gets to you its my first time using the site. I'm so scared. my brother had chemo for 8 weeks, a 3 week rest and in a few days (on feb 3, 2026) he will have the Esophagectomy. it will be done in montreal. he's going to have chemo after too. he said, the tumors close to his stomach. it may seem odd but I havent asked what stage but i think must be 2-3 because of needing chemo before and after. i decided not to ask because I dont want to here 4. i was confused bybyour post... did you say surgery xmas 2024 and then a temor stayed, everyone said surgery but chemo and radiation treated it. I'm so sorry you are suffering. it was brave of you to have the surgery... but is this what will happen to my brother will he have his own private hell. are there days that you dont feel sick. bless you.

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Profile picture for relicmeister @rselicmeister

I have stage 4 which is considered inoperable and incurable. Much time was wasted in ruling out cardiac causes for my pain, and the swallowing difficulties did not manifest until early spring. By the time I saw my gastroenterologist i was unable to eat and sometimes unable to drink. I got my diagnosis- stage 4, spread to spine and that evening went to the ER due to extreme pain and dehydration. They admitted me and 2 Days later got a G tube so I could get nutrients. I’m 5 “ 7” My regular weight is around 135 and I bottomed out at 115 lbs about a week after being discharged. I had 10 radiation treatments ( to address the spinal pain) and while it had no effect on the pain, it caused esophagitis that was quite miserable and is only now really improving. I just finished my 3rd round of chemo
( 3 to go) which now included 2 mutation -targeting immunotherapy's drugs that might have life-saving effects.
Thus, the past few weeks have been the worst because of the esophagitis, continued severe pain, and chemo side effects. I’ve started to gain weight again albeit slowly, and am now able to slowly drink fluids. There are a few days following each chemo cycle where the side effects really wipe me out, but I’m now able to work 4 hour days a few times a week. I’m hoping each day for signs of improvement which I would judge by a decrease in pain, and a possibility of swallowing
“ cream of “ soups and then sautéed foods ( such as wet mashed potatoes with gravy) Having not eaten by mouth since late May, I am building quite a food wish-list.
I want to experience an improvement that shows real tumor shrinking ,
considering the fact that chemo and immunotherapy are all I’ve got - surgery being off the table.

I don’t expect any new pet-scans or another endoscopy until the 6th and final chemo is done.

Best of luck to those on this thread who are suffering with EC . Keep strong in faith

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@rselicmeister hang in there. you are a wonderful person

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