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Vaginal Sling (TVT) Complications
Women's Health | Last Active: Mar 20 4:37pm | Replies (28)Comment receiving replies
@trisha85 You already have good input from sisters-in-pain, @mackaymouse and @shauna18 with similar challenges. Quite a bit of what you comment feels familiar to me, as well. I admire your ability to understand what is happening with you as well as your drive and commitment to live the best life you can today and every day. You’ve got this.
I realize I did not include the link to Mayo Clinic appointments. Here it is: http://mayocl.in/1mtmR63
Like you, I was not able to get the care I needed locally. Not making progress is what led me to Mayo Clinic. It sounds like you have a wonderful physiotherapist and chiropractor helping you. This makes me think of Physical Medicine and Rehabilitation at Mayo Cinic in Rochester. They work with other departments as needed for individual patients. You may want to review more about them or even share the information with your Physio and Chiro. I guess, more heads are better than one!
-Mayo Clinic Physical Medicine and Rehabilitation: https://www.mayoclinic.org/departments-centers/physical-medicine-rehabilitation-mayo-clinic/sections/overview/ovc-20467039
You mention independence, productivity and guilt. At least that what stands out to me that I relate to. I have been trying to look at a positive side of not having resources to do all I want to do. It is an opportunity to regroup and decide what is most important. I realize I do not want to be the person that does it all. I want to be intentional and feel good about what I do decide to do.
I would like to stay connected with you and stay up to date on your progress. Will you come back and comment as you have thoughts/takes steps forward?
You stated your biggest challenge right now is minute and range of motion. Do you think they could be improved, do you want to pursue that? Have you considered adding someone to talk to, maybe a relationship, or life coach to help you figure out what the new you will look like?
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@jlharsh - absolutely, I am happy to keep you updated on my next steps and appreciate you sending the link. In fact today, I submitted a request to the Mayo Clinic to see if they will review my case. I was impressed with how quickly the process was started and all the emails I was receiving. I am hoping that after the team reviews, the reports I provided with all findings and imaging they are able to shed some light. I have been told that the mobility issues and decreased range in motion is not something anybody can guarantee me will change. With the exception of my physiotherapist and chiropractor who tell me to stay optimistic everyone else has just suggested I have been proactive and done everything I could and just need to accept that. The situation is what it is. I am currently in a frame of mind where I would like to explore what the new normal will look like and incorporate a couple of hours of work in a week to start which my employer is happy to work towards with me while understanding my limitations. I cannot complain from that stance as my work has been very understanding during this time. Well, I am trying to plan what that might look like and what I want my life to look like going forward, I still do not want to give up on finding answers. You said something that really stood out to me “It is an opportunity to regroup and decide what is most important. I realize I do not want to be the person that does it all. I want to be intentional and feel good about what I do decide to”. I can relate to this as I recently sent to my husband “I’m tired of being the people pleaser and trying to do it all and make everybody happy yet I’m not making myself happy. I want to live my life going forward to do what I want not what I think is expected of me by everybody else”. This has been a hard one to learn and I can tell you I’m still learning it, but I now do say no more so than ever before. Appreciate you @jlharsh.