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Why only limited diagnosis of cusses or PN?
Neuropathy | Last Active: 48 minutes ago | Replies (4)Comment receiving replies
Hello @tar94577, Welcome to Connect. Not an easy question for anyone to answer (just my opinion). I also have idiopathic small fiber peripheral neuropathy. There are different tests to determine if you have damaged peripheral nerves. The tests just show that you have neuropathy. I think the gold standard test from what I've read is the nerve skin punch biopsy where they take a small skin sample and physically count the number of nerves in the sample, more info: https://pmc.ncbi.nlm.nih.gov/articles/PMC9262281/.
I've often thought mine might be either hereditary or possibly because I have been in the pre-diabetes category which puts a person in the metabolic syndrome condition which has it's own known association with neurological conditions and neuropathy - The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
Do you have pain with your neuropathy? Have you started any treatments or medications?
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@johnbishop thx for the reply and links.
As to your questions:
1/ pain? Occasionally. In my right foot. My main symptom is numbness: in my left lower leg just above the ankle. And, in my right hand (when I bike) and in my right foot (toes to arch on good days or toes to heel on bad ones).
2/ treatment? My primary doctor has me on 2700 mg of gabapentin per day. (3times per day doses of 900 each). My current podiatrist is also having me go thru 5 sessions of ultrasound & a massage therapy of my right arch up to the behind of my shin.
3/nerve tests? The neurologists have each simply done a conductance (I think it was) test that showed them both: “yep, you’ve got PN.”