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laurenseavertson789 avatar

Any one else have Arachnoiditis & intractable pain?

Chronic Pain | Last Active: Feb 17 11:21am | Replies (17)

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Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

Hi @laurenseavertson,

I'd like to invite @scouillard, @pdabbott, @bolake, @sophie46 @gsr4863 and @cgreenle to this discussion as they have had experience with adhesive arachnoiditis and may be able to share their experiences with you.

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Replies to "Hi @laurenseavertson, I'd like to invite @scouillard, @pdabbott, @bolake, @sophie46 @gsr4863 and @cgreenle to this discussion..."

@JustinMcClanahan Would love that, but since i can't hold my head up etc....Will be challenging When will it be exactly? Feel like I'm going to pass out, from most severe pain, that I've ever had. Just got a great therapist, free for me She has PHD & doing on computer. I can't function, due to pain, all my hardware, can't drive, etc.....feel like I'm on Mars or some other weird place. Dilaudid, IV is good. But no one cares, or will risk their licenses for any narcotics. I've had severe pain from Arachnoiditis, but this is basically my entire spine & it's hopeless. My spine surgeon, got me out of 6 yrs in a wheelchair, but now i feel like I'm in Hell... No family, have a sister 16 miles away...says i'm doing all this for attention, making it all up! Since i was totally paralyzed from MRSA, etc....just one crisis after another. I get 5 minutes, or less with my pain Doc.. I asked her if she was familiar with A, & she didn't know what it was etc...She's not my first pain doc,,, I think i need a neurological inpatient rehab. I can't stand up long enough to take a taxi, etc, for out patient rehab. I also have severe pain in both arms too ( my spine tethered C, 5 6 & sacral area. ) It all sounds crazy & not sure, if i can make it..i might go crazy from severity of pain ETC... Live in Mesa AZ, Help, i can't sit up to type this, pretty much, not able to function Have severe Bowel Incontinence...going as much as 8 times a day & much difficulty in cleaning up, cuz my spine is so rigid, no water therapy, cuz of permanent suprapubic catheter & i'm multi drug resistant ..Require IV antibiotics for 5 thu 7 days. due to resistance... Is this a nightmare??? Can't exercise much ( used to work out 6 days a week etc) I'm basically 'i"m vegetable, can't hold book, magazine, Go to the Dining Room, can no longer take senior fitness classes, on & on... Plus, i may have to move to another apartment in this Retirement facility...read all Dr Tennant's stuff, but i can't do most of it. So stiff, i can hardly move....fell on my back & head weeks ago. hospitals here, so over crowded, & they just dump u ...Wish i could get help from Dr Tennant, but i'm very severe pain, trying to write this even Can't put together all my shit. I wouldn't believe it, if someone told me all this.. would think i'm crazy!! i need relief fast. Any advice.??