@jlharsh Thank you so much for the encouragement, understanding and support. I am happy to hear that the team at the Mayo clinic has been able to help you. I often wondered if this is the next thing I need to explore. It’s great that they have you on a path with a focus, approach and next steps. I feel like I have never had this from my medical team. They have just constantly told me I need to accept things as they are. Only my physiotherapist and chiropractor have been able to give me any type of a path which has been frequent treatments help but don’t solve or a provide long term solution. They just make it more tolerable which I can accept short term but I’m not ready to stop looking for answers or trying new things. Even though some days are harder than others I keep going and keep trying. I have found that although I was always a planner I now take everyday as it comes and listen to my body. If it’s a bad day, I now treat it as that and if it means not accomplishing what I wanted to, so be it. That’s probably been the hardest in addition to admitting I physically can’t do what I use to be able to do. I moved out on my own at 19 and have always been independent and quite stubborn wanting to do everything on my own and rely on no one so having to change that and accept help has been hard. I’d say the biggest challenge physically is my mobility and range of motion being limited. Some days I just don’t feel steady on my feet. Aside from that it’s missing my kids sports or if I have to drive them it’s when I have to sit in the car because I can’t handle anything else can’t be fully present as I use to be. It’s the “mom guilt”. Aside from that, I’d say it’s being frustrated because every test, image or doctors appointment shows nothing or accomplishes nothing. Sometimes I feel like am I just creating this because they find nothing and thankful my physio and Chiro always tell me “this is real don’t feel otherwise”. It’s just frustrating. Thank you again for reaching out. It means a lot!