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Vaginal Sling (TVT) Complications
Women's Health | Last Active: Mar 20 4:37pm | Replies (28)Comment receiving replies
@trisha85, you have been through a lot and I imagine every new thing you try is exhausting. I am so impressed by your ability to go through this and manage all that goes along with it. Kuddos!
I am a patient at Mayo Clinic. I was told when I got there in 2022 they knew what was happening but weren’t sure what to do about it. They have taken an integrative approach effective for my systemic symptoms. It would be about protecting my heart then taking one symptom at a time, and that is exactly what we have been doing. I was it would be a marathon. Like you, I have been going through a marathon. Everything my care team has done has incrementally helped my quality of life, also handle with extreme compassion. I do not want to think of where I would be with them.
It has been difficult to turn into a person I do not recognize. Like you the physical part is not all that is affected. Mind, body and spirit all deal with the same experience. My approach has been to only focus on the next best decision then work that direction. It is the only way I know of to make progress. I say this to encourage you to keep going. You can do this!
Not sure if you are open to yet another try, but I will provide a link to contact Mayo Clinic for an appointment. I imagine they may be able to tell you with pretty good certainty if they think they could help you without you making the trip, rather by reviewing your testing that has been done already.
What is your biggest daily challenge? Have you found anything that provides relief, or you think helps you?
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@jlharsh Thank you so much for the encouragement, understanding and support. I am happy to hear that the team at the Mayo clinic has been able to help you. I often wondered if this is the next thing I need to explore. It’s great that they have you on a path with a focus, approach and next steps. I feel like I have never had this from my medical team. They have just constantly told me I need to accept things as they are. Only my physiotherapist and chiropractor have been able to give me any type of a path which has been frequent treatments help but don’t solve or a provide long term solution. They just make it more tolerable which I can accept short term but I’m not ready to stop looking for answers or trying new things. Even though some days are harder than others I keep going and keep trying. I have found that although I was always a planner I now take everyday as it comes and listen to my body. If it’s a bad day, I now treat it as that and if it means not accomplishing what I wanted to, so be it. That’s probably been the hardest in addition to admitting I physically can’t do what I use to be able to do. I moved out on my own at 19 and have always been independent and quite stubborn wanting to do everything on my own and rely on no one so having to change that and accept help has been hard. I’d say the biggest challenge physically is my mobility and range of motion being limited. Some days I just don’t feel steady on my feet. Aside from that it’s missing my kids sports or if I have to drive them it’s when I have to sit in the car because I can’t handle anything else can’t be fully present as I use to be. It’s the “mom guilt”. Aside from that, I’d say it’s being frustrated because every test, image or doctors appointment shows nothing or accomplishes nothing. Sometimes I feel like am I just creating this because they find nothing and thankful my physio and Chiro always tell me “this is real don’t feel otherwise”. It’s just frustrating. Thank you again for reaching out. It means a lot!