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@jfh1970
Thanks for sharing all that. I wasn't a candidate for surgery either, similar circumstance
with the lymph node and a 3.5 cm tonsil tumor. No doubt larger by the time I got into treatment 3 mos later after diagnosis.
The NavDx test is available and might have blood drawn for that next week if the VA insurance will cover it.
Find that out tomorrow. you are 3 months out now good luck with the PET scan hope you are clear after all that !
Getting the IMRT photon therapy here so pretty concerned about swallowing issues , other
long term ailments and quality of life if the treatment continues much longer,
I am intrigued by a MSK study showing 2 chemo cycles and 30 gy is effective for non surgical
H&N HPV pos. patients .
https://www.mskcc.org/news/low-dose-radiation-possible-game-changer-treating-hpv-positive-head-and-neck

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Replies to "@jfh1970 Thanks for sharing all that. I wasn't a candidate for surgery either, similar circumstance with..."

@woodsy1 I know photon produces significantly more side effects than proton, but it is equally as effective with this disease.

Suggest you do everything possible to stick it out. When eating becomes nearly impossible, try to sleep more. You’ll be tired anyway and the days go by faster that way.