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What does the future look like for a stage 4 NET patient?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (37)Comment receiving replies
Stay active and healthy as you can- makes a difference!
Have had stage 4 NETs since April 2015! Started in GI system - resection surgery in 2015 (2) and 2020. Moved into my liver in 2023 - liver surgery in 2024 ( removed 45 tumors) -liver ablation in Jan 2025.
Have had PRRT , landreotride shots - all in effort to slow growth - still have lesions in liver, bones ( femur and hip) - but feel lucky to be nearly 11 years of fighting.
Work out daily , ski, swim work - trying to be thankful for all I have
Stay after it! Dr Thor and team ( and amazing Mayo surgeons) have been w me every step.
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Hello @post17 and welcome to Mayo Clinic Connect. From your post, I see you have been on a long journey with NETs since 2015 and have undergone many different treatments. I'm glad to see that you are connected with some great NET specialists at Mayo Clinic.
It sounds like you maintain an active lifestyle, which is wonderful. Your journey with NETs is an encouragement to all of us. We have other members with a similar story to yours, including @tomrennie.
How are you feeling? Do you have a good appetite and maintain your weight?