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Ray Kemble avatar

Living with PN, do you find yourself retreating from life?

Neuropathy | Last Active: Mar 5 10:44am | Replies (144)

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@ray666
Hi Ray,
I think it's a wonderful idea to speak with a counselor. I'm very sorry to hear of your loss. I have a therapist I speak with regularly and it helps. I do have a lot to say every time we meet. She helps with processing my grief over the complxities of this disease and of course my limitations. We work on accepting and rewarding one self for every little step forward. Good luck with the new step you're taking. I believe you'll benefit from it!
All the best,
Betti

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Replies to "@ray666 Hi Ray, I think it's a wonderful idea to speak with a counselor. I'm very..."

Thank you, Betti. I'm looking forward to talking with the counselor. I know from my two "situations" (long-standing large-fiber PN, resulting in predominaely balance issues; and a sepsis infection, contracted in 2024, which only compounded those balance issues) how easy it is to "give up," to let the world you once enjoyed to gradually fade away. Aging alone can do that. Folks around ere know I'm often quoting choreographer Twyla Tharp. As Tharp writes, unless we make a determined effort not to let ithappen, as we age we find ourselves living in fewer and fewer rooms. When you add a disease like PN on top of aging, the rooms we find ourselves living in can become even fewer. // I'll let you now how Wednesday's meeting goes. Cheers! ––Ray (@ray666)