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Gluteal tendinopathy - endless pain - losing my mind

Chronic Pain | Last Active: Feb 20 9:19am | Replies (81)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@meterrilee Oh yes, those of us with any kind of chronic pain can empathize with "Six years of this! I need to do the PT exercises regularly but I either forget (if I'm feeling reasonably comfortable) or I'm hurting too bad to do them."

But honestly, what an otherwise forgettable PT said 30 years ago has always stuck with me "Motion is lotion" - so I move every day, in spite of the hurting. Years ago, I had severe hip bursitis after revision surgery. The orthopedic surgeon was definite - "these exercises are forever" - as long as I remember that, it has not flared.

Here is a tip another mentor and I have shared before - start your day with gentle stretches - BEFORE you even get out of bed. This imbeds it in my routine, just like using my inhalers before coffee, or taking my meds before I brush my teeth.

Here is another idea for you to consider - the "spoon theory" - it teaches you to measure your energy output to avoid overdoing. This can end the cycle of feel good, do too much, crash, hurt like mad... For those of us formerly go-getters, it is a hard thing to learn. Finally, in my mid-70's, I am beginning to get it.
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/

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Replies to "@meterrilee Oh yes, those of us with any kind of chronic pain can empathize with "Six..."

@sueinmn Thank you for this. I've never heard of "spoonie" before. I will look into it further, but at first glance, I understand the concept and it makes sense. I normally make lists of tasks on my calendar with moveable post-it notes (and usually way too optimistic for what I can accomplish these days). If I don't get it done on one day, it gets lifted and stuck to the next day. I've gone weeks and weeks for some items. 😀 I believe you are correct about the motion and exercise requirements. I need to incorporate these into a normal routine. Some nights I'm unable to fall asleep at all, and finally do around 5 a.m. out of complete exhaustion. Then I sleep longer than I want and jump right into the day without any time to stretch or do some of the PT moves. Thank you again for your caring response. I appreciate it.

@sueinmn
Thank you for your thoughtful response. I began hip pain 2 years ago, I have 2 labral tests, tears in gluteus Maximus, the greater trochanter, and pain in IT band. I have had off the charts pain in September. I also have bone on bone pain and once this hip pain is resolved headed for a 3 level fusion, L-3-S-1. The hip pain is a pain I never thought possible. 1.5 years PT. 4 months with current PT who has helped a lot as this is a result of 5 broken metatarsals and improper walking. I take enough pain pills that would kill an ordinary person, however Tylenol seems to be the best actually. Now that cold weather is here, MY Myasthenia Gravis has been acting up though it is well managed.
I have to laugh. Type A personality, only I can do it perfectly, 72 yrs old, refusing to relax when I feel good so I too am on that wheel.
And yes when we feel like we make progress then we throw all the good habits out the Window. My PT is dismissing me end of month due to Medicare limits, so I will have to begin a new habit. Thanks again for this reminder.