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Newly diagnosed and confused over treatment for lichen sclerosus
Autoimmune Diseases | Last Active: Feb 11 3:07pm | Replies (141)Comment receiving replies
@2thfairy
Thank you so much for sharing your story! I will definitely try the coconut oil. I’ve heard a lot of good things about it. Did you suffer with lesions? Clobetasol doesn’t seem to really help mine. Some days I think so & some days no. I do have SSD but didn’t think it would help, I’ll try that also, how long did it take for your lesions to go away & did it burn when urinating? Any advise is greatly appreciated!
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@andwho
Yes, I have had many lesions that left scarring that actually closed my vulva to my urethra, thus the need for laser surgery to evaporate the scars so urination was free. The burning when urine hits those lesions can be excruciating, and we’ve all experienced it. I recommend placing ozonated coconut oil, emu oil, or even Aquaphor over the lesions before you urinate to keep burning away.
Also a frozen bottle of water against your vulva for several minutes provides great temporary relief from lesions. I usually do that lying in bed.
Hugs to you.