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@andwho
You are not alone in your LS diagnosis. I was diagnosed at age 48 (now I’m 65) and used Clobetasol until I was 64, with very little relief. I had an LS laser treatment in Phoenix that didn’t help AT ALL. I had three laser treatments in Pensacola, FL at Coyle Institute that were very helpful, a couple years apart. But the LS always comes back eventually, and is thought to be an autoimmune disorder. Dr Michael Coyle had me completely quit using steroid ointment last February, instead using OZONATED COCONUT OIL a couple times each day (I buy from Pur online) and for the first time in years, I’ve had no further lesions. I do have itching off and on, but it’s tolerable.

For the lesion that absolutely won’t go away, SSD cream helps me. A lesion usually heals after one or two applications. (Silver SulfaDiazine.) This isn’t something normally prescribed for LS, but is for burns, that quickly helps with healing the skin.

I hope you find relief. This is a great forum to belong to for LS sufferers.

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Replies to "@andwho You are not alone in your LS diagnosis. I was diagnosed at age 48 (now..."

@2thfairy
Thank you so much for sharing your story! I will definitely try the coconut oil. I’ve heard a lot of good things about it. Did you suffer with lesions? Clobetasol doesn’t seem to really help mine. Some days I think so & some days no. I do have SSD but didn’t think it would help, I’ll try that also, how long did it take for your lesions to go away & did it burn when urinating? Any advise is greatly appreciated!