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DiscussionWhat could doctors do better for people with epilepsy?
Epilepsy & Seizures | Last Active: Apr 2 7:15am | Replies (71)Comment receiving replies
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@randallshields56
Hi Randall!
Thank you so much for sharing this experience.
I also really appreciate when my doctor tells me with sincerity and kindness what I'm facing. Thankfully, I now have a doctor who treats me as a partner and is patient about explaining my exam results, answering my questions, and addressing my fears. But it hasn't always been like that with other doctors I've encountered on my epilepsy journey. The effort to find a doctor who truly treats me as an individual was more than worth it!
I've noticed something interesting when talking with fellow epilepsy patients— the majority know what kind of seizures they have, but not always what type of epilepsy they've been diagnosed with. I wonder if doctors aren't explaining this distinction between seizure and epilepsy type, or if the epilepsy diagnosis simply hasn't been shared?
Chris
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