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Hello Queeniep69

Sorry to hear about your struggles and pain. This is really challenging not only physically but also puts massive strain on your psyche.

Your symptoms sound very similar to mine. Afer years of searching I was finally diagnosed with small fiber neuropathy. As John had commented already many pain related neuropathies cannot
be diagnosed with the usual NC and EMG tests. However, more and more chronic neuropathy pain patients are being discovered to have small fiber neuropathy. This is being tested through skin biopsy.

Dr Ann Louise Oaklander is a leading expert in SFN.

There is a very informative youtube video called "A name for the pain". Maybe you are interested to watch.
Perhaps you also want to consider testing for SFN.
All the best!

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Replies to "Hello Queeniep69 Sorry to hear about your struggles and pain. This is really challenging not only..."

@pennycurious1
What do you do if you have small fiber neuropathy? I’m being tested for it in February with a skin biopsy.